I wonder if it’s ever going to get any easier.. Not that I’m complaining, really.. It’s just that the older she gets, the more she seems to realize that she’s different.
Watching her try and be like her sisters is so hard sometimes. She wants so badly to be able to do things for herself but she can’t. She’s so frustrated all the time now that she’s constantly lashing out at everyone. Tantrums and tears have become an every day thing and it’s awful.
Not that I blame her..
We’ve always done our best to allow her to be as independent as she possibly can, and I really think it’s added to her overall quality of life. Sure, we could have built a ramp when she was two and let her live her life sitting in a wheelchair as suggested, but I don’t think she’d be who she is today.. The smart, strong willed, independent little girl we’ve managed to raise could never have learned to do things for herself in a chair. Hell, those doctors all said to prepare for the worst and just look at her now, she’s incredible. We’ve never treated her any different than we have her brothers and sisters and she’s never had it any other way. Today she laughs and loves and tests her limits just like any other seven year old would. She gets her feelings hurt and loves to dance and spends every day at the same public school as her siblings.
She’s perfect just the way God made her and if given the choice, I’m not sure I’d want her any other way. Don’t get me wrong, I would do just about anything if it would mean giving her a normal life. For her to walk and talk and get up and dance on her own would be a miracle, but I love her all the same the way she is.
God doesn’t make mistakes, and I’m pretty sure He didn’t start with her.